Living through a terminal disease (Juvenile Huntington Chorea)

Juvenile Huntington Chorea

I am twenty one years old.when i was eighteen i was diagnosed with Juvenile Huntington Chorea. I had wondered most of my life why i was always feeling sick or not able to do things other kids were able to do.

I thought I was just being a baby or had something growing with me mentally because of the symptoms i was having. The doctors did every test they could think of and said they were all negative and that all my symptoms were in my head.

My mother even agreed with them until i had my blood test done for Huntington disease and it came back that i had the juvenile strain. Some of my symptoms included aggression, anxiety, sadness, trouble coordinating and troubles walking and talking. Eventually around seventeen years old i developed chorea which is involuntary movements and those movements worried me. Especially since not one person payed attention to my cries for help. After i got my results my mom was so surprised and worried because she had not believed me that whole time and she didn’t want me to have to suffer from a disease that kills off your central nervous system until u pass away. I had the type that crippled me faster.

Looking at my past and comparing it to the present it scares me because i am still to young to die and i have no choice but to except it when it comes. Not one person knows exactly when that will be. This disease is different with every victim so there is no telling when my soul will go to heaven. I know i have to stay positive so i have a happy life at least what i have left of it.