Brain Aneurysm/AVM Community Togetherness ACT
I am a brain aneurysm survivor. I made it through a rupture then another craniotomy one year later to clip a second aneurysm that developed. I belong to a wonderful group that I have included in a link below. The one commonality that we all share is that those around us…..not all but most, just have no idea what we are going through on the inside of our minds. It is a confusing jumbeled up mess of trying to deal with thoughts, and words and decisions so that it is sometimes just plain old overstimulating to us. Those we love think that we are moody, or perhaps non-social. You see the change yet dont understand that we are only trying to get used to what we have to deal with.
We see things “a little bit different” as I have tried to capture in the meme below. We are more emotional, we don’t have filters in communication, we more often than not mis-communicate because we can’t find the words to describe what is going on in our mind. We hurt easier, and we go through somewhat of a depression in trying to make this new adjustment to our altered mind. Brain injuries are unseen traumas that happen to our brain the most understudied of all organs, yet the most important in the funciton of life. Most people think that because you can walk, talk and function you are good to go. They think that if it looks okay on the outside that everything must be healed and back to normal. If thats what you think, than folkes you couldnt be more wrong.
If you or someone you love has suffered from an aneurysm, AVM, stroke or any traumatic brain injury, I only ask that you educate yourself. When you begin to learn what it is we are dealing with you will also see that you are not only either. There are people tucked away in every corner or the world that are or have dealt with many of the same issues that you are going though.
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I've had family die from aneurysms. Some have been blessed to have to clot caught early and some were alone when they aneurysm ruptured. Any injury that happens with the brain can leave survivors very delicate. It's great that you're sharing your testimony. I'm sure it must not be so easy to share a story that can leave one immobilized and has caused so many deaths. I'm glad you're better and continuing to spread the word.
Thanks Tanikka, Im pretty happy to be here to be able to spread the word! If you know anyone affected send them my way!
My father is the unlucky one. After his heart surgery, he had an aneurysm. He never woke up and the family was so devastated. We cannot do anything since it is God's plan. I randomly miss my father and it is difficult to forget the journey of the family. I am well-educated about the brain conditions based on my medical profession.
I am very sorry to hear about your father's fate. I know it is too difficult to lose a father, the head of the family. I have experienced that when my father has left us. I am very sorry for my mother who has lost her hubby who is humble, kind, loving. However, mother was able to tackle her misery, her worry and everything for we are there as her children to help her, to get through with the greatest test of living together with our father.
We couldn't imagine our family without a father. It is good that we are all grownups. We have all our jobs and we have our own family to support. Meaning, we are all independent. My parents are living with me. I am the one who support while they're living. Now I am in my own for my mother was already gone.
I am truly so very sorry for your loss Shavkat. He is at peace remember that. Its something that I will eventually write about but I got a chance to feel that and it is close to indescribable. He is with you always as you are.... who you are, because he touched your life and memories. XO
It takes great courage to recover from a traumatic brain injury of any kind. My grandmother was one of the strong ones like yourself: she had an aneurysm burst at the age of 55 and had to relearn pretty much all of her activities of daily living. She went on to live several decades more, during which time she was active in the community and her church. She played cards like a pro, learned to paint, and cared for herself alone for many, many years.
That made me smile Kyla...thank you.....Grama sounds like a warrior for sure. Its a struggle but life becomes so very much more when you go through something like that. Its a gift that she was around to be with you all through all those years. Treasure that always!
You seem to cope well. No I have not come across any with such a situation but can only say that I have learnt something today.
I am glad for that! I do believe that I was very lucky to come out still functioning. Unfortunately thats not always the case, and sometimes people have to start learning again from scratch. If I can play a part in keeping them going and teaching people about this injury im all about jumping in with both feet!
You are lucky.I pray God to protect me from any harmful diseases and likewise to my family I love most. May we all be always in good health.Fortunately, we haven't encounter a disease like that, I praise the Lord.
Said a prayer for you and yours as well. Faith sure comes in real handy both when well and when sick. I did have prayers groups from all over and WA-LA it worked. Nothing bet the best for you and yours Cely!!