Categories: Health

Dementia the dark lonely world of caring for a loved one

dementia is such a horrible disease it is a thief, it comes in to steal your loved ones memories, health, well being, and then thier lives. My mother was diagnosed with dementia last year and we struggle to care for her, we want to keep her with us as long as possible so my sister and I take turns caring for her. Within this year she has gone from a calm person who goes along for the ride to being paranoid and afraid to even sleep by herself, the people left to care to someone with dementia have to struggle to even keep their sanity watching thier mother or thier father slowly melt away right in front of them. The only things that help me get thru the day is knowing for one that whatever mom does she has no control over her actions anymore and two I’m doing what’s best for my mother. Caring for a dementia patient you have to always stay on your toes things change so fast one minute thier is anger the next tears, I have learned to accept that you can’t go day by day now it is more like hour by hour.

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amongst the dark days there have been bits of sunshine, days when mom seems to snap back into her old self the mother I knew, I cherish these few rays of sunshine before the clouds drift in to take my mom away again back to her lonely prison cell inside her own mind.  I find comfort in writing while on duty caring for mother as my sister finds comfort in reading, i find it very difficult trying to care for my own family and to also be there for mom but I juggle in between the 2 hoping I’m doing everything right.




  • Tags: dementia
    Melissa Ellis

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    • My mother in law had dementia before she died. The sad thing is that she could not remember my name. One thing that comforts us is that she died at the ripe old age of 104. She was a believer, strong in her faith as well as the physical aspects of her life. In her 80's, she suffered two minor strokes and broke her hip in her 90's, yet she managed to bounce back. Alas, when she reached 101, she had a series of mini-strokes and she started to regress physically. She went from a wheelchair to being in bed for 2 whole years. Towards the end, she had a peaceful death and died in her sleep. It was challenging at first but we credit God for giving us strength to endure.

    • Dementia is such a horrible thing to have. I really wish that there was a cure for it but there is not. Just sitting back watching these elderly men and women especially if they are husband and wife...watching them lose every precious memory that they have hurts them. I work with them everyday but don't get me wrong I love my career as a Certified Nurse Aide but it just the things they have to go through form there family members on down to in-laws or friends of the family. They don't stop to think that they have this disease and they treat them like as if they still know what they suppose to do and know what their not suppose to do. It's crazy but I think that people need to start treating their siblings and teaching them on how to help cope with the disease because they need all the support that they can get.

    • It's very hard to care for my mother because it's just my sister and I to care for her around the clock, but we do all we can for our mother and try to keep her as peaceful and comfortable at home as long as we can, we both realize that there may come a time where neither of us will be able to care for mother but nursing homes have such bad reputations I'm quite sure there are a lot of really nice nursing facilities out there as well as a lot of bad. Most of the time when a family member is diagnosed with dementia thier adult children step in to care for them and it adds a load of stress to thier life's, a lot of times the adult children are further along into thier life's as well some sick or older, and that adds stress as well.

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